Celiac Disease Centers
Celiac disease centers and programs at university medical centers and hospitals across the country conduct research, offer clinical care and provide a wealth of information for patients and medical providers on their websites. Subscribe to their lists and follow on social media.
Join the Celiac Listserv to participate in a national conversation on all topics related to celiac disease, gluten sensitivity and the gluten-free diet. This resource is declining in usage but still active.
Drug Development and Research
Research is under way by this list of companies and institutions to find pharmaceutical or alternative treatments for celiac disease. Some of them are in clinical trial, ranging from early to late stage development.
Jump into conversations (or just read others’ conversations) about the topics that most interest you. Trade information about products, restaurants, doctors and more. There are a variety of platforms that host groups, including Facebook, which hosts over a hundred groups on gluten-related topics, including celiac groups in other countries (search Facebook for a term like “celiac” or “gluten” and select Groups in search results to see them). Yahoo Groups have closed down, but some have migrated to other platforms such as groups.io, where you can search for groups with terms like “celiac” and “gluten” — for example, the Celiac Bay Area group has migrated there.
Many but not all are now digital only. Their websites and emails are full of great information.
National Institutes of Health
Science-based information about the symptoms, diagnosis, and treatment of celiac disease from the NIH’s National Institute of Diabetes and Digestive and Kidney Diseases, as well as clinical trials. The NIH is part of the U.S. Department of Health and Human Services.
Large nonprofit organizations in the United States, Canada, Mexico and many other countries offer a variety of services to their membership and the public, improving lives in a multitude of ways, increasing awareness, or promoting our interests at the local and national levels. Join or subscribe to one or more and receive newsletters and emailed updates. Their websites and emails are a treasure trove of information and news.
Social Media and Blogs
Most gluten-free manufacturers, cookbook authors, support groups and national organizations serving the gluten-free community have an extensive social media presence. In addition, there are countless blogs on every facet of gluten-free life. Everyone’s list of favorites is different so explore the ever-changing landscape.